The debate over a controversial form of autism treatment reveals just how little is known about the developmental disorder's origins--as well as the political and scientific complexities of exploring possible solutions.
Earlier this week, an Associated Press story by Carla Johnson titled “Fringe autism treatment could get federal study", questioned a new form of therapy for autistic children known as chelation. Some parents and health authorities are advocating for a study to test the effectiveness and safety of the treatment, which involves removing metals from the body.
Critics believe chelation is unproven and too risky, citing the death of one child following chelation therapy in 2005 and a general lack of scientific research on potential health hazards. Describing the opposition's perspective, the AP article uses the term “voodoo medicine” and refers to parents pushing for the study as “desperate.”
The piece touches on a widespread but hotly debated belief among many affected families—that autism is caused by a mercury-based ingredient in some vaccines known as thimerosal.
So far, scientific research has not yielded clear proof of an autism-vaccine link, and the government has rejected the arguments of many autism parents-turned-advocates. But with autism-spectrum disorders affecting about one of every 150 children, families keep struggling for answers.
With those odds, is chelation worth the risk?
Barbara Fischkin, a former Newsday journalist whose 20 year-old son has autism, sent us a letter voicing her frustration with the AP article. Her son is receiving a form of chelation treatment on Long Island, she says, and is showing some signs of improvement. On a personal level:
“These kinds of treatments come from the same scientists and doctors who dare to look outside the box in an attempt to do something about an epidemic that now affects more than one in 150 children. If we call what they are doing 'voodoo' or 'fringe'—instead of progressive—our kids will never get better.”